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Thursday, 03 March 2011 13:39

Wow hasn't time flown.  It's been a long long time since our last blog update, so before I get started I'd like to explain why and firstly appologise.  Some of the old members will notice the site now looks completely different.  Unfortuantely the old site was hacked and mounds and mounds of indecent meterial posted all over it.  Basically I had to rebuild the whole site.  This was completely self funded and took many painstaking hours, weekends and nights.  To prevent this in the future all posts in to the forums will be moderated first before they appear.  Before I go on to our little soilder Harry, can I extend a warm welcome to our newest members who we have met through Parents Hemi Chat on facebook, what wonderful, hardworking people you all are.  So, to continue as best I can (Mummy is going to be writing the blogs in future as she always did, because I'm useless with remembering things!)........

WOW!  Reading the last blog, our little man wasn't even walking.  How things have moved on!  Harry started walking against all the odds and doctors telling us he wouldn't before he was 2 and there's been no looking back since.  It was slow progress though and Harry seemed to get very frustrated with himself because he couldn't do things he wanted to do, as soon as he was stable on his feet though his frustration soon vanished (so did all the choclate from the cupboards too!).  His hand was still very tightly fisted with thumb rolled in, but he was fantastic at doing things with one hand that you'd normally need 2 for.  Harry continued to go for eye tests and every one of them came back normal so now the visits are every 6 months. 

Harry started Hawthorne in September 2009 as Michelle said was happening in the last post, and it has been truly amazing for him, socially, mentally and physically, it also gives mum some much needed relax time with other mums with children that have disablilites too.  Unfortunatley it is harrys last few weeks there as they have to leave when the are 3.  That will be an upsetting day I'm sure.

Michelle told you all she had gone back to work 2 days a week and Harry was Nursery.  Well now Michelle is back fulltime and Harry goes to a registered childminder (Aunty Yvonne he calls her) where he absolutely loves it.

The Blackpool holiday was an experience.  The Daisy Chain Project was an amazing place for the kids with themed bedrooms, they absolutely loved it and I would recommend it to any of you.  We enjoyed it too, our bank balance didn't!  They joys of Blackpool i guess!  Harrys speech is fantastic, so much so that he insists on singing I've Got a Feeling by the Black Eyed Peas constantly from start to finish.  We took him on his first holiday abroad in May last year to Turkey, thanks to Family Fund, I wasnt sure what he'd be like, round the pool, with other kids etc, but the little lad held is own trying everything he could including copious amounts of food!  Again a bit of frustation came in when it came to the pool as he didnt want us in there with him (Mr Independant) but if we let go he would slip and I would have to do my baywatch impression every time.  All in all though what a fantastic holiday.

I'll bring us up to today now and all the things I'm missing (I know I am) Michelle will update and fill in.  2011 has seen a major turning point for Harry.  He got referred by the specialist for Botox injections in to his palm.  I wasn't sure about this and was frightened to death for him (I have heard how much it hurts).  By the by Michelle convinced me to let him have it done.  We turned up at the hospital on the date and some Doctors gave him a local Anesthetic (I'll come on to what that did to him!) then took him through to a room where Michelle distracted him and BAM!  in the needle went.  Harry squirmed for a bit but then was fine.  The Doctors asked us to stick around until the anesthetic had worn off and told us we wouldn't see the effects of the botox for at least 2 weeks.  I was sat with Harry on my knee in the waiting area and he wanted to get down and play with some toys, I told him no because he couldnt stand because of the anesthetic.  No further of a doo Harry attacked me in my face and eyes and scrambled to the floor.  OVER HE GOES and BANG!  Head straight on to big toy castle.  Accident book please!  I tell you this in case you go through it.  Do not put them down for a second! So, 2 weeks the doctors said.  More like 2 days.  I have NEVER seen Harrys hand like this!  It's open, thumbs out (most of the time) and hes even started using it of his own accord.  Dont get me wrong, hes not going to start playing piano or anything but what a difference!  The route they have decided to go down with his leg is a splint, and that comes mid March, then I am looking forward to him being able to have trainers like Daddys instead of him having to have his boots.

So all in all, Harry has come on leaps and bounds, and he is a wonderful little boy and my best mate.

These Blogs will be updated now every week so please get as many people as you can to join.  Thank you very much and love to you all.

Paul x

 

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