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Launch Day PDF Print E-mail
Written by Administrator   
Monday, 23 February 2009 00:00

Today saw Harrys Hemi go live! Wow what a response! Paul posted a link on the Facebook site "Living and coping with Hemiplegia" and he has also contacted Scope and Hemihelp to see if they will agree to linking us!! By the close of play we have 15 members already which is pretty good in 1 day I would say!! We have had lots of very complimentary and heartfelt messages from people congratulating us on the site.....let's hope it is the start of something big and we can turn this negative into a big fat positive! So, please make as many people as you can aware of this site.

As per usual our little man Harry is happy and adorable. He is nearly sat up on his own now so we have made a little progress before we have started any physio which is extremely encouraging.

Harry is still doing everyday "normal" things such as paddying, grinding his teeth, grabbing his spoon out of my hand at dinner time and smearing himself and me with food - bless him!

We are still waiting for the MRI scan to come through - just want it over and done with now so we can stop worrying - it's in the back of our minds all the time but shouldn't be too long now.

 
Welcome to Harry's Blog! PDF Print E-mail
Written by Administrator   
Wednesday, 18 February 2009 00:00

Hello and welcome to Harry's blog.

It's been 2 weeks now since Harry's diagnosis. In the last 2 weeks we have done a lot of research on the web - the best website for explaining the condition is Hemihelp I think. Facebook has also been a godsend - probably the inspiration for creating this site. I have made about 10 new friends on Facebook by joining a group "Living and Coping with Hemiplegia". It is quite unbelievable how many children there are out there with this condition that 3 weeks ago I'd never even heard of! Yesterday Harry's appointments came through for his Specialist Health Visitor to visit us at home (4th March) and his Team Assessment (12th March).  The Team Assessment sounds a bit daunting - one way mirrors, video link and about 8 team members but I am sure it will be fine. We are still waiting for his MRI scan but were assured last week that it will be within 4 weeks. They were also able to tell me that it will be on a Tuesday or Thursday as those are the days that they scan babies and children so that was quite useful for forward planning. We are slowly coming to terms with things and starting to feel a little better than we did at first. A lady from Scope rang me today also to welcome us and to ask if we want to be put in touch with another family from Leeds who have also recently had a diagnosis. Harry is still happy as ever and none the wiser to his condition bless him.

 
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